Come play my game

I've had such a wonderful day .  Back to conducting weddings with the help of my husband who as always has been my rock. This morning my doctor was rather positive so much so he overwhelmed me. I'm on the road to recovery , it's going to take some time. my fluid increase means I have at least 16kgs of extra fluid sitting on me. My throat and mouth because of my rubbish immune system is covered in Candida which is sore and ulcerated but I'm here. I had a phlebotomist in today talking  away to me and she just stopped and said "but you're so happy" eh hen course I am, I've used about 4 lives already but hey I'm so grateful for everyone coming together to help me. it's going to be long, I can not wait until my legs aren't blistered or my ads is so big I have a bigger kadunk kadunk than Nikki Minaj but I'm here and I'm so very grateful. don't get me wrong it's shit at times too but what's the use in being do...

When the schoolies come to visit but you don't want to look ill so you go for the mental look  instead. so nice to have a catch up, babies, proposals , amazing sparkling rings, new developments and loves and simply Devine banter . Thank you ladies xxx

My very own milktray man , all because the lady wanted pizza  best husband award goes to Dougie Today didn't start so well, my doctor point blanked told me we couldn't do weddings this weekend. I understand why. I'm on this tpn  and I need to be hooked up to this venflon until they can get a picc line in but this isn't likely till Monday. IV steroids to blame cos i can I burst into tears , I know the severity of my situation that it's ok just now but an infection could change that however my weddings are my heart, I can go and forget I'm a bit off, no one knows when I take to the stage that anything like this is happening and it gives me my sanity.  I simply adore my job. Dougie brought me pizza, my doc on ward and macgregor sorted out a picc line and all going ok with my legs and if I can get a chaperone for each wedding I should be able to go work my magic. which I am so very grateful for. My team are simply the most brilliant group, they work tog...

pussys on our head

Rock on old yin Positives about today - My fave doctor told me he was much happier today than he was about my situ than yesterday. after he called me very sick yesterday I told him this morning I love you for your honesty but a blatant simple opinion like that helps no one. I'm not sick I'm getting better positives - with my bowel and stomach and basically my whole system inflamed I'm not digesting things so I've finally been started on tpn "Total parenteral nutrition (TPN) is a method of feeding that bypasses the gastrointestinal tract. Fluids are given into a vein to provide most of the nutrients the body needs. " positives - I've managed to eat some crisps and drink juice. I've gotten on with some work and I did my hair and makeup. also made my day today that horrible histories have a new series YAS! boo parts - I had to get a picc line put in as a midline is not big enough to administer the tpn but I've been assured I'm on the ...

Last night was not a good day , I was exhausted, I was in an incredibly amount of pain with the leg who has the HUGE blister on it and no amount of diversion techniques was helping it or oramorphe. So at 4am a wonderful doctor came along and fed me more pain killers, she gave me one with a sedative edge and I was pretty much in the midst of saying - I doubt I'll sleep when boom I was out. Today I sent an email to my amazing doctor letting him know what had happened over the weekend. My lungs are coughing up stuff, my legs are incredibly sore, I'm not getting any food and so he waltzed in today and the first thing he said was . .. .he turned to my nurse Andy and said kirsty is really sick. I burst into tears but more from frustration, I'm under no false pretences or ignorance , I know I'm not well but. . . . . .words like sick or ill well they can fuck off. I don't have time or brain space to think like that I just said I'm in the right place and tha...

So last week they decided that I should get my.bone marrow checked. Bone marrow is simply wonderful, it can answer a lot of questions and possible new avenues . The main ones for me being why in the past three months have I needed 5 blood transfusions? So I thought i would  let those of you out there who maybe will be getting this done soon or it's on the cards my experince. The doctor was lovely and thankfully she just turned up at my hospital bed so I never had much time to react either way is nerves or scared. We chatted away as she asked me if there was anything I would like to know to which I replied. "Nah nothing, it needs done so if there are side effects after I'll just deal with it. " She did explain that she would be going in via my pelvis, but first they would inject local anaesthetic  in the area before she would go in with bone marrow procedure step 1. Step.one required a lot of pressure and pushing and because I have so much fluid on my bo...