pussys on our head

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Day 18 post op

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Saturday Day 18: I woke at 8am and did my drugs and colomycin before heading back to bed and I slept in till 10.30am. I was so happy to be still in bed at such a late time, it’s the best sleep I’ve had ion ages. We watched another wire and stayed in bed for most of the day. Then Doug’s jumped over to lie beside me and knocked my knee where it dislocated. I lay for about 3 minutes trying to put it back in whilst trying to not pass out. It eventually went back in but Doug wanted to call the hospital. Mum is coming to join me this week as I can’t stay in the flat myself. We have a clinic appointment on Tuesday morning, so mum arrived about 2pm today and we had some lunch. At 3.30pm Doug’s and I went for a walk and braved the Newcastle winds and rain. As we walked Dougie said he hadn’t ever walked as fast for as long with me before We took a walk around the park and pond and back to the flat but it was a 50minute walk and my legs were killing me. My mum has brought stuff for me to exercise...
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Day Two post op

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On day two post op Friday I got myself up out a chair and went to move my drains and then had myself a little panic attack. I think the drains reminded me of my lung collapse and I felt like the air was vanishing from me. The nurse walked in and sat with me whilst I apologised and started to breathe better again. The physio came in and got me up on my feet marching on the spot, nice and slow and then lifting my leg a bit further then I had another wee panic attack. The physio said I’ve been through a lot and how well I was doing but I’m just so aware that I have such an amazing opportunity with these lungs that I don’t want to ruin in any way. Day three Saturday My two lower chest drains were removed today, nice to not have any drains, now it’s just two to go. Dougie arrived down on Saturday. I had said there was no use as he wouldn’t be able to get in but he wanted to just come down and wave from the window. He also brought me down my phone and some stuff from the house. Dad had gone ...
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July 2017

Most of you know for months now I haven't been well. I returned from a holiday in New York filled with an excess of 5 lbs of fluid, and when I went to hospital this doubles to ten as my team tries to work out what was happening. My kidneys were strained , my liver was reacting badly , I was fatigued and well we didn't really have answers. We moved about on fluid tablets which  got rid of the fluid I was sent home and was back up in a week severely dehydrated. There has been so many guesses, fumbles, tests, blood tests out my ears that my veins have began collapsing and still we never seemed to come close to an aanswer. this instagram is my journey. I'll be hashtagging stuff from the past it's 5am the now Andi don't have the strength to go over everything but let's just say There have been moments where I'm not sure if my story is coming to an end or not. and I've told my husband that if that were the case I don't want him to let anyone say ...
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