pussys on our head

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So a bit of a harsh reality picture here. 16 kgs of #fluidretention can really fuck with your body. Sorry it's morning and you've probably spewed up now but actually it could be dinner or lunch it's all pretty gross. I've got a wonderful ability to rose tint things and im.not sure how many layers I'm using on this but it seems to be working ok eh,  I also wanted to take pictures and then share because although this isn't normal I also want others who may be experiving this to be able to see how far your body can come. Today I'm out to do makeup for a beautiful bride then I'll head straight back here, back on tpn as I have a few visitors tonight. waiting for my #tpn machine to finish and I'll be free again! ok so gross picture done for now #cysticfibrosis #transplant #fluidretention
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So usually I hate a steroid iv face but just now after being so I'll I'm loving it. unfortunately it has no reflection on my conduction as I am still stupidly underweight but it's nice to see a wee chubby cheek. I've had a great day today. Out to do wedding makeup for the beautiful Katie and her bridesmaids and mum. my hubby took me and I explained by legs were a bit dodgy but they were such a beautiful family and they looked gorgeous. I then headed back for the hospital and my sister Tracey came to visit, which was lovely cos I've missed her. AND she brought me some my little pony balloons. and I just loved seeing her. Then a surprise visit from my double Fi Fi and a visit from my girl Debbie armed with steak pie. I mean apart from the injections and pain and uncomfort and well aye everything is kinda great. I'm gonna post up some pics including card of the stay so far. In other news my kidneys are being a bit shitty so we have stopped all oral fluid ta...
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I haven't typed in some time. Weeks actually and so much has happened but to be honest the shock I think, took over, followed by sleep deprivation, followed by a hint of paranoia and a lot of adgitation whilst smiling. Whilst thinking through the floodlunggate of the other Saturday it dawned on me that I could have died, this could have been a blood clot and lastly I dug my head into the mud and didn't look up. I was so obsessed with the fact I had been able to breathe through it I hadn't thought, what if the fluid never stopped and I drowned. I spent the next five nights trying to sleep on a big  back chair, comfortable as it may be it isn't any bed but I lied to myself saying it was best to sleep there because my feet were still losing more water than Niagara falls . This led to me  falling,  where I awoke having slipped in between the two chairs and thankfully two auxiliarys came to my rescue to help pick me up. As usual I found this hilarious. I had...
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