pussys on our head

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So usually I hate a steroid iv face but just now after being so I'll I'm loving it. unfortunately it has no reflection on my conduction as I am still stupidly underweight but it's nice to see a wee chubby cheek. I've had a great day today. Out to do wedding makeup for the beautiful Katie and her bridesmaids and mum. my hubby took me and I explained by legs were a bit dodgy but they were such a beautiful family and they looked gorgeous. I then headed back for the hospital and my sister Tracey came to visit, which was lovely cos I've missed her. AND she brought me some my little pony balloons. and I just loved seeing her. Then a surprise visit from my double Fi Fi and a visit from my girl Debbie armed with steak pie. I mean apart from the injections and pain and uncomfort and well aye everything is kinda great. I'm gonna post up some pics including card of the stay so far. In other news my kidneys are being a bit shitty so we have stopped all oral fluid ta...
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So a bit of a harsh reality picture here. 16 kgs of #fluidretention can really fuck with your body. Sorry it's morning and you've probably spewed up now but actually it could be dinner or lunch it's all pretty gross. I've got a wonderful ability to rose tint things and im.not sure how many layers I'm using on this but it seems to be working ok eh,  I also wanted to take pictures and then share because although this isn't normal I also want others who may be experiving this to be able to see how far your body can come. Today I'm out to do makeup for a beautiful bride then I'll head straight back here, back on tpn as I have a few visitors tonight. waiting for my #tpn machine to finish and I'll be free again! ok so gross picture done for now #cysticfibrosis #transplant #fluidretention
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Insta July 2017

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So I bet you've seen a blister before but check out the size of these. Yesterday I got back to ward with this mammoth blister, unfortunately being a Saturday not too much can be done but the on call doctors came and popped the worst ones. They have since filled again and it's really not very pleasant at all however it's superficial and tomorrow is monday. I had some small blisters on Friday which my doctor said was due to lack of nutrition so hopefully this week we will get on top of these. #embarrassingbodies #blisters #gross #fluid #cysticfibrosis
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